Technology helps families dealing with Autism work straight from their homes

A Kansas City doctor has found a way to bring specialized treatments to children with Autism without making parents drive more than 5 miles from their home.
Audrey Lintner knew early on her son was different than most kids.
“Oh gosh, since he was a baby,” she said.
Tommy was diagnosed with Autism last year.
“It’s very difficult to convince him to stop for whatever reason, I’m in this pattern I need to finish this pattern,” said Lintner.
One in 50 kids around the U.S. are diagnosed Autistic and the number is rising.
“There’s also research that shows that those individuals that are higher functioning, that as they age out of school and they age into young adulthood, that they’re unemployed and they’re underemployed,” said Dr. Linda Heitzman-Powell, who is specialized in Autism research.
Heitzman-Powell has helped hundreds of families dealing with autism.
She's educated parents, like Audrey, without forcing them to travel thousands of miles to get to her.
Instead, she helps treat kids through a webcam.
She’s taught Audrey new techniques to help give Tommy structure and grow in basic social skills.
“You change the learning outcome, you change the trajectory,” said Powell.
Sixteen weeks of training has given her a whole new perspective on helping her son and even herself.
“I think it helped me possibly more than it’s helping Tommy,” she said.
Heitzman-Powell says they plan to provide the program to Spanish speaking families in the near future.

Read more and watch the video:

Technology helps families dealing with Autism work straight from their homes

"Life on the Autism Spectrum can be ENJOYable."

Journal of Autism and Developmental Disorders

Editor-in-Chief: Fred R. Volkmar - The Journal of Autism and Developmental Disorders is the leading peer-reviewed, scholarly periodical focusing on all aspects of autism spectrum disorders  and related developmental disabilities. Published monthly, JADD is committed to advancing the understanding of autism, including potential causes and prevalence (e.g., genetic, immunological, environmental); diagnosis advancements; and effective clinical care, education, and treatment for all individuals. Studies of diagnostic reliability and validity, psychotherapeutic and psychopharmacological treatment efficacy, and mental health services effectiveness are encouraged. JADD also seeks to promote the well-being of children and families by publishing scholarly papers on such subjects as health policy, legislation, advocacy, culture and society, and service provision as they pertain to the mental health of children and families. Review articles are solicited in targeted areas of special interest; book and media reviews provide targeted updates on important new materials; and the Ask the Editor column serves as a forum for addressing timely questions of relevance to JADD’s broad readership.

ISSN: 0162-3257 (print version)
ISSN: 1573-3432 (electronic version) Journal no. 10803
Listen to Dr. Volkmar on Aspergers/Autism

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Downloads

Documents

237	Social Skills Interventions for Children with Asperger’s Syndrome or High-Functioning Autism: A Review and RecommendationsRao, Patricia A.; Beidel, Deborah C.; Murray, Michael J.
201	The Ritvo Autism Asperger Diagnostic Scale-Revised (RAADS-R): A Scale to Assist the Diagnosis of Autism Spectrum Disorder in Adults: An International Validation StudyRitvo, Riva Ariella; Ritvo, Edward R.; Guthrie, Donald; Ritvo, Max J.; Hufnagel, Demetra H.; McMahon, William; Tonge, Bruce; Mataix-Cols, David; Jassi, Amita; Attwood, Tony; Eloff, Johann Show all authors (11)Hide authors
153	Efficacy of Sensory and Motor Interventions for Children with AutismBaranek, Grace T.
153	A Screening Questionnaire for Asperger Syndrome and Other High-Functioning Autism Spectrum Disorders in School Age ChildrenEhlers, Stephan; Gillberg, Christopher; Wing, Lorna
139	Social Skills Development in Children with Autism Spectrum Disorders: A Review of the Intervention ResearchWilliams White, Susan; Keonig, Kathleen; Scahill, Lawrence

Journal of Autism and Developmental Disorders

"Life on the Autism Spectrum can be ENJOYable."

so you think you know AUTISM?

  You may know that many are endeavoring to solve the genetic puzzle of autism.  Do you know that a nonprofit created the first genetic database for autism, AutDB?  You may know that recent rates for Autism is 1 in 88 children.  Do you know about the Autism Reading Room outreach project?  You may know there is an enormous amount of information available on autism.

 Do you know that every six hours, an autism research paper is published. As of May 8, 2012, the number of autism research articles had grown to 19,822.  You may know that many apps are addressing autism.  Do you know that the  Autism Reading Room features interactive tools to explain current scientific knowledge about autism spectrum disorders. Offering a new phone app that tests autism knowledge, Autism Quiz, 
the 

 first comprehensive online project to build bridges between scientific research on autism and the public,

 is available free at the iTunes store.   

So you still think you know AUTISM?

Offering access to published scientific research as well as easily understandable summaries written by a team of MindSpec scientists, the Autism Reading Room explores topics such as:

• Risk Factors: comprehensive summary of genetic and environmental factors
• Diagnosis: compilation of all current tests and strategies
• Brain Biology: overview of brain development, focusing on autistic brains
• Advances: latest scientific developments in autism treatment
• Trends: exploration of current and historical trends in autism research
• News in Context: guide to autism news stories
• Misconceptions: the facts about autism
• Autism Dictionary: >900 terms related to autism
• Autism Quiz: app freely available on iTunes

  Here are 3 examples of  'Advanced' level test questions from Autism Quiz in the Autism Reading Room by MindSpec:

So you still think you know AUTISM?

  Quiz Question: Last week Nature published two mouse models of autism created by manipulating the SHANK2 gene. These models can be used to test potential new autism drug treatments. What is the function of SHANK2 at the synapse? (Answer will be revealed Friday!)

So you still think you know AUTISM?


  Quiz Question: Using a brain imaging technique called diffusion tensor imaging (DTI), how early can brain differences be detected in infants who develop Autism Spectrum Disorders? (Hint: To find out, visit our News in Context section, http://readingroom.mindspec.org/?page_id=6577)  




So you still think you know AUTISM?
  Quiz Question: In April 2012, Nature published three genetic studies that discovered autism-linked mutations which arose spontaneously, or de novo, meaning that they were not inherited from either parent. How high are their new estimates for the number of potential autism risk genes? 


The Autism Quiz answers to these 3 questions can be found at Autism Reading Room  or via the Autism Reading Room iTunes FREE app:  Requirements: Compatible with iPhone 3GS, iPhone 4, iPhone 4S, iPod touch (3rd generation), iPod touch (4th generation) and iPad. Requires iOS 5.0.
   MindSpec is a nonprofit organization that is working to solve the genetic puzzle of autism by utilizing innovative bioinformatics strategies to accelerate research on common neurodevelopmental disorders. With our research we hope to foster discovery and development of treatments that alleviate the symptoms of affected individuals.  MindSpec created the first genetic database for autism, AutDB. The Autism Reading Room is its first outreach project and the 

 first comprehensive online project to build bridges between scientific research on autism and the public. 

   Every six hours, an autism research paper is published. 

 As of May 8, 2012, the number of autism research articles had grown to 19,822. How can affected parents possibly understand this overwhelming amount of scientific information? The answer lies with the creation of the Autism Reading Room.  
The public launch of the online Autism Reading Room was on  Tuesday, 5/15/12, in DC, 5 pm, Koshland Science Museum at the Nat'l Academy of Sciences.
1 (703) 288-4420 - info@mindspec.org - 

8280 Greensboro Drive, Suite 150, McLean, Virginia 22102

 

MindSpec Presents PEATC Webinar

On Wed April 25, 2012 at 12:00 PM, MindSpec will broadcast an autism webinar for PEATC, the Parent Educational Advocacy Training Center. 

"Life on the Autism Spectrum can be ENJOYable."

[Check out more EnjoyHi5Autism summertime fun activities on Pinterest!]

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Book fests, Best Apps for Kids, e- Book and pictur... SIGN THE PETITION: Stormy Rich Gets Banned From Bu... 'Micah's Voice' - Boyz II Men star & The Sing-Off ... Happy VALUE Day! New Orleans Saints Sep 12, 2010 Disability Employment App Challenge: Educating Emp... AUTISM IS A DISABILITY... and not just because it gets you a 'Disability' Parking Spot! EnjoyHi5!Autism at EnjoyHi5!Autism  *AUTISM IS A DISABILITY! * *Autism is a Developmental Disability. Note the use of People First Language in the title. Ignorance is running rampant! Lack of understanding is dangerous! Lives and livelihoods are at stake! Stop the senseless bickering and nonsensical comparisons about disabilities, especially if you a affiliated with the disability community(individual, family, agency, organization,etc...). People with disabilities have enough to contend with in the arenas of non-disabled views and neuro-typical pontifications. Disability Rights Advocates have fought long ... more »

Subscribe to AUTISM is a Disability.

Subscribe to:  I am aware of Autism. Are you?

'Nothing about us without us'

‘Nothing about us without us’:
Enabling non-discriminative autism and Asperger’s syndrome research participation.

Too often autism and Asperger’s syndrome research is carried out without first consulting with the ‘experts’- people with the condition. This can result in studies which do not fully appreciate diversity, use inappropriate research designs and methods and include terms of reference which may be disliked by the very people who are included in the study. It is important that researchers ask the right sort of questions and that they are phrased in a way which is ‘autism friendly’. In order to make research participation as inclusive as possible it is also very essential that interview situations are conducted in a manner which is made as comfortable for the participant as po...ssible.

Therefore, I am offering autistic people the opportunity to take part in a consultation which will contribute towards the development of a research project investigating the criminal justice system experiences of autistic young suspects, defendants, and offenders.

You do not need to have any experience of the criminal justice system yourself to take part in the consultation as rather than being research participants you would actually be informing the development of a doctoral research project which will over the next two years identify and include participants who themselves have experienced the criminal justice system as young people.

If you would like the opportunity to take part in this consultation, or know of someone else who might like to participate, please contact me- Ann Browning by email at A.L.Browning@lboro.ac.uk and I will send you a consultation pack.

If you would like to know more about me or my research please visit my recently developed website at http://www.lboro.ac.uk/departments/ss/staff/research_students/browning.html
or my Loughborough University profile page http://www-staff.lboro.ac.uk/~ssalb2/index.html

I hope that you will take the opportunity to ‘have your say’ in the development of this important, worthwhile and much needed study.

Kind regards,

Ann.

Publications 

Browning, A. and Caulfield, L. (2011). 'The prevalence and treatment of people with Asperger's syndrome in the criminal justice system'. Criminal Justice and Criminology, 11, 2. Pp.165-180.
Links
http://lboro.academia.edu/AnnBrowning PhD 

title: ‘The criminal justice experiences of young suspects, defendants and offenders with Asperger’s syndrome and other autistic spectrum disorders in the UK’

Current Research:
Using an interpretative phenomenological analysis (IPA) approach I shall examine the criminal justice experiences of young people with autistic conditions who have been suspects, defendants or offenders in the UK, investigate any transitional issues which arise in emerging adulthood as young people are transferred from youth to adult justice services and explore the methodological complexities of undertaking research with young autistic participants in forensic settings and develop appropriate research strategies.

Ann Browning

Research Student
Department of Social Sciences
Loughborough University
Loughborough
Leicestershire LE11 3TU
England
Email: a.l.browning@lboro.ac.uk
Telephone: 07957411139
Nationality: British
Start Date: October 2011
Status: Full-time.

   Loughborough University - Department of Social Sciences

More news

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Loughborough’s undergraduate students are satisfied with their courses, compared  with a national average of 83%.

Loughborough University has been outstandingly successful in receiving a total of six prestigious Queen’s Anniversary Prizes for Higher and Further Education. 

UK League Tables

• 11th in The Guardian
• 14th in The Complete University Guide
• 11th in The Sunday Times (2012)
• 16th in The Times Good University Guide

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National Student Survey
The most recent poll showed 88% of 

"Life on the Autism Spectrum can be ENJOYable."

Look Me In The Eye: UMass Autism Study Looking for Volunteers

A Umass researcher is developing a screening tool for motor difficulties leading to language challenges in kids with autism. Do you have a child, 4-11, who might join the study? It's in Amherst, Massachusetts.  John Elder Robison 
Look Me In The Eye   http://jerobison.blogspot.com/2012/06/umass-autism-study-looking-for.html

From time to time I've posted calls for volunteers for research studies in the New England area. Here's one from my home town school: UMass: A doctoral student in the Communication Sciences and Disorders program at the University of Massachusetts - Amherst is completing her research in the area of speech differences in children with autism spectrum disorders. Part of her dissertation work is the development of a screening tool that Speech and Language Pathologists can use to identify potential motor difficulties that lead to language problems in children with autism. That knowl... more »  (John Elder Robison) at Look Me In The Eye

She is seeking two groups of volunteers: children with an autism spectrum diagnosis (this means autism, Asperger’s, or PDD-NOS), plus neurotypical children for her control group.

Volunteers must be 4-11 years old, with a vocabulary of at least 50 words. Children should have no cranio-facial or other structural differences, such as cleft palate, or uncorrected visual or hearing deficits (hearing aids and glasses are acceptable).

[For more info.]

Look Me In The Eye: UMass Autism Study Looking for Volunteers


via

"Life on the Autism Spectrum can be ENJOYable."

Journal of Positive Behavior Interventions - Early Evaluation of Imitation Disorders in Autism

SAGE Publications logo (Photo credit: Wikipedia)

Journal of Positive Behavior Interventions - A Journal of the Hammill Institute on Disabilities

via SAGE Journals online

A Brief Clinical Scale for the Early Evaluation of Imitation Disorders in Autism

 Autism Spectrum

"Life on the Autism Spectrum can be ENJOYable."


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