Saturday, December 3, 2011

Is Autism Research Ethical? Legal? any Social Implications?

'Is Autism Research Ethical?  Legal? any Social Implications?'
Have you considered participating in Autism research?
Have you participated in Autism research?
Did you consider the Ethical, Legal and Social Implications of Autism Research?

Are you considering conducting research on Autism?
Have you conducted research on Autism?
Did you consider the Ethical, Legal and Social Implications of Autism Research?

What Problems do you think exist with conducting Autism Research?
What Solutions have proven beneficial in Autism Research?

Were your questions, concerns and comments considered during Autism Research?
Did the Researchers or methodology of the Autism research consider the impacts on your personal, religious, financial, disability, and cultural views?

Did you receive compensation for participating in Autism Research?
Was your Autism Research adequately funded?

Based on previous experiences...
Would you participate in other types of Autism Research?
Do you consider Autism Research relevant, reliable and resourceful?

Consider participating in the ASAN Symposium on Ethics, Legal and Social Implications of Autism Research conducted by The Autistic Self Advocacy Network, in conjunction with the Petrie-Flom Center for Health Law Policy, Biotechnology and Bioethics, the Harvard Law Project on Disability and the UNESCO Bioethics Chair American Unit.

Purpose:  By including equal numbers of self-advocate and researcher participants, we hope this will serve as a starting point for meaningful dialogue between those conducting research on autism and the community of Autistic adults and youth.
When: December 10, 2011 from 9 AM to 3 PM
Where: Harvard Law School Campus, Hauser Hall, Room 105,1563 Massachusetts Avenue
Cambridge, MA 02138
Cost:free event - space is limited - RSVP
Topics:  will include Prenatal Testing, Community Participation in Research Methodologies, Appropriate and Inappropriate Intervention Goals and much more.
Contact: Ari Ne'eman - Autistic Self Advocacy Network 202.596.1056

Confirmed Participants: include the Administration on Developmental Disabilities Commissioner Sharon Lewis, ASAN President and IACC Public Member Ari Ne'eman, National Institute on Child Health and Human Development Director Alan Guttmacher, Harvard Law Professor Michael Stein, Paula Durbin-Westby, Emily Titon, Liz Pellicano, David Rose and many more.

 Click here if you are Unable to attend to leave your Comments and give a donation to ASAN. 

The Autistic Self Advocacy Network is excited to be taking this first step to creating a collaborative climate with autism researchers. Please consider supporting ASAN's initiatives to advance a quality of life oriented research agenda and to call attention to critical ethical, legal and social concerns in autism research, such as prenatal testing, the setting of appropriate and inappropriate intervention goals, balancing safety and self-determination and much more. $10.00 $25.00 $50.00 $100.00 $250.00

EnjoyHi5Autism - Autism Self Advocacy Network(ASAN) for offering live streaming of the 'ASAN Symposium on Ethics, Legal and Social Implications of Autism Research' at Harvard Law School. Referred by the Autistic Women's Network (Facebook).  Shared with 'EnjoyHi5Autism' community at Also, we share with EH5A global supporters at

References & Resources

IAN Project - Interactive Autism Network The Interactive Autism Network (IAN), is an innovative online project bringing together tens of thousands of people affected by autism spectrum disorders (ASD) and hundreds of researchers in a search for answers. 

"Life on the Autism Spectrum can be ENJOYable."

via @AAPD (American Association of People with Disabilities)
Presidential Proclamation -- International Day of Persons with Disabilities | The White House
On International Day of Persons with Disabilities, we recommit to ensuring people living with disabilities enjoy full equality and unhindered participation in all facets of our national life. We recognize the myriad contributions that persons with disabilities make at home and abroad, and we remember that disability rights are universal rights to be recognized and promoted around the world.

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Thanks for sharing.