A UCLA study that is the first to map autism-risk genes by function and uncover how mutations in the genes disrupt fetal brain development was widely reported in recent news, including this Nov. 21 article by HealthDay News.
Read an excerpt from the HealthDay News article below, and the entire HealthDay News article here.
Research Probes Autism's Origins in the Brain
Two studies identify gene mutations that act together to disrupt the brain's wiring before birth
By Brenda Goodman
HealthDay Reporter
THURSDAY, Nov. 21, 2013 (HealthDay News) -- Two research teams say they have pinpointed how changes in genes linked to autism act together to disrupt normal brain development.
AUCD - Unraveling How Autism Disrupts the Early Brain (UCLA - IDDRC)
"Life on the Autism Spectrum can be ENJOYable."
Sunday, December 15, 2013
1-to-1-Aides---Be-Careful-What-You-Wish-For
Paraprofesdional or Aide?
A Parent is not a substitute for an Aide.
Just like Teachers ate qualified, Paraprofessionals and Aides should be trained.
Learn more from Wrightslaw at
http://myemail.constantcontact.com/1-to-1-Aides---Be-Careful-What-You-Wish-For.html?soid=1101518003158&aid=rePzKz3IS3U
"Life on the Autism Spectrum can be ENJOYable."
A Parent is not a substitute for an Aide.
Just like Teachers ate qualified, Paraprofessionals and Aides should be trained.
Learn more from Wrightslaw at
http://myemail.constantcontact.com/1-to-1-Aides---Be-Careful-What-You-Wish-For.html?soid=1101518003158&aid=rePzKz3IS3U
"Life on the Autism Spectrum can be ENJOYable."
Saturday, December 14, 2013
NACDD: DD Act Celebration Panel and Jeapordy!
Liz Weintraub
Liz spoke on the Long Term Services and Supports Panel during the White House 50th Anniversary of the DD Act Celebration (November 15, 2013).
For more videos by the National Association of Councils on Developmental Disabilities, subscribe to the NACDDmeetings Youtube Channel.
via
A snippet of Liz's presentation during #WHddAct celebration. #AUCD @nacdd http://ow.ly/ruL1A
Also, here are a few photos by the
"Life on the Autism Spectrum can be ENJOYable."
Friday, December 13, 2013
Wrong Planet - Interview: Henry and Kamila Markram about The Intense World Theory for Autism
Our quirky autistic columnist, John Scott Holman, interviewed Henry and Kamila Markram, originators of the Intense World Theory. Read their compelling and refreshing insights in this Wrong Planet exclusive…
1. The Intense World Theory sheds light on the mystery of autism, and offers fascinating and refreshing insights. This theory may baffle those with a limited understanding of neuroscience. How would you explain Intense World Theory to the layman?
3. Many members of the autistic community have embraced Intense World Theory, claiming it to be an accurate reflection of their own experiences, and a radical departure from the outdated and socially stigmatizing disease models of the past. Why has it taken so many years for the scientific community to draw a conclusion which autistics themselves find to be quite obvious? What prevented Intense World Theory from emerging years ago?
Read the complete interview at:
Wrong Planet - Interview: Henry and Kamila Markram about The Intense World Theory for Autism'
"Life on the Autism Spectrum can be ENJOYable."
The boy whose brain could unlock autism
Autism changed Henry Markram’s family. Now his Intense World theory could transform our understanding of the condition.
IMAGINE BEING BORN into a world of bewildering, inescapable sensory overload, like a visitor from a much darker, calmer, quieter planet. Your mother’s eyes: a strobe light. Your father’s voice: a growling jackhammer. That cute little onesie everyone thinks is so soft? Sandpaper with diamond grit. And what about all that cooing and affection? A barrage of chaotic, indecipherable input, a cacophony of raw, unfilterable data.
The boy whose brain could unlock autism — Matter — Medium
"Life on the Autism Spectrum can be ENJOYable."
Wednesday, December 11, 2013
Sign Petitions on "The Tragic Kingdom"
The Tragic Kingdom - Sharing the stories about the hardships and sadness caused by Disney's abandonment and disregard of those with special needs.
Petition #1
Disneyland / Disneyworld Discontinues Guest Assistance Card for Special Needs Families
Petition by Kim McClain
To be delivered to Robert A. Iger, Chairman and Chief Executive Officer of The Walt Disney Company, Thomas O. Staggs, Chairman, Walt Disney Parks and Resorts, and Jayne Parker, Executive Vice President and Chief Human Resources Officer The Walt Disney Company
Disney is planning to end the Guest Assistance Card Program at Disneyland and Disney California Adventure. We need to communicate how this change will impact the families of people with disabilities. Our voices need to be heard. The proposed change will prevent our families from being able to access the park and will result in fewer visits by those impacted by special needs.
There are currently 36,144 signatures. NEW goal - We need 40,000 signatures!
CLICK here to sign this MoveOn.org Petition: http://petitions.moveon.org/sign/disneyland-discontinues
Petition #2 -
Disney We Have Tried Your New System Like You Asked. For Us it does not work!
author: Kim Mcclain
target: Disney Corporate Executive Officers
signatures: 183
SIGN this PetitionSite.com petition at:
http://www.thepetitionsite.com/253/157/119/disney-we-have-tried-your-new-system-like-you-asked-for-us-it-does-not-work/
McClain Special Needs Advocacy shared a link.
Autism and the New Disability Assistance Card at Walt Disney World ...
Disney Changes Rules on Passes for Disabled Guests | KTLA 5
Durangoan challenges Disney over disability access program
Petition #1
Disneyland / Disneyworld Discontinues Guest Assistance Card for Special Needs Families
Petition by Kim McClain
To be delivered to Robert A. Iger, Chairman and Chief Executive Officer of The Walt Disney Company, Thomas O. Staggs, Chairman, Walt Disney Parks and Resorts, and Jayne Parker, Executive Vice President and Chief Human Resources Officer The Walt Disney Company
Disney is planning to end the Guest Assistance Card Program at Disneyland and Disney California Adventure. We need to communicate how this change will impact the families of people with disabilities. Our voices need to be heard. The proposed change will prevent our families from being able to access the park and will result in fewer visits by those impacted by special needs.
There are currently 36,144 signatures. NEW goal - We need 40,000 signatures!
CLICK here to sign this MoveOn.org Petition: http://petitions.moveon.org/sign/disneyland-discontinues
Petition #2 -
Disney We Have Tried Your New System Like You Asked. For Us it does not work!
author: Kim Mcclain
target: Disney Corporate Executive Officers
signatures: 183
SIGN this PetitionSite.com petition at:
http://www.thepetitionsite.com/253/157/119/disney-we-have-tried-your-new-system-like-you-asked-for-us-it-does-not-work/
McClain Special Needs Advocacy shared a link.
Thank you Jennifer R...for taking the lead on promoting our new petition. Hey guys...sign this if the DAS did not work for you and please also share with others. We need this one to take off like the last one! Thanks!!! Kim McClain, you...r Friendly Neighborhood Advocate ♥
Please sign this one. Thank you!. http://www.thepetitionsite.com/253/157/119/disney-we-have-tried-your-new-system-like-you-asked-for-us-it-does-not-work/
Please sign this one. Thank you!. http://www.thepetitionsite.com/253/157/119/disney-we-have-tried-your-new-system-like-you-asked-for-us-it-does-not-work/
Disney We Have Tried Your New... - The Petition Site
www.thepetitionsite.com
Disney consulted with agencies who do not respresent families and changed their disability system to... (182 signatures on petition)
"Life on the Autism Spectrum can be ENJOYable."
Related articles:
We are creating these and will send them out to you on a case by case basis and in preparation of your trips to Disney in attempts to spread the word and help others. Disney and other pages/sites advise steering away from this page due to ..."Misinformation". In reality, you will receive the truth because outside of advocacy, inspirational information, we primarily post your stories which helps to educate our community on what is happening as well as all of the inconsistencies with the new program.
McClain Special Needs Advocacy shared a link.
Special Needs Advocates Fight Back Against Disney's New Rules... | David Cruz
www.ktlkam1150.com
Special needs advocate, Kim McClain, spoke with us about the protests that her organization has been hosting near Disneyland in Anaheim. The purpo
disneyparks.disney.go.com/.../disney-parks-disability-access-service-card...
Guest Assistance Card Program Update for Walt Disney World ...
disneyparks.disney.go.com/.../guest-assistance-card-program-up...
Oct 4, 2013 - The new Disability Access Service (DAS) Card will replace the Guest ... The present system allows for this, so I am wondering how the new ...
Disney updates the Guest Assistance Card (GAC) with the new ...
www.youtube.com/watch?v=2iXfWSlg08M
Oct 9, 2013 - Uploaded by TemporaryTourist
The Temporary Tourist shows the process to obtaining Disney's Disability Access System (DAS) card. For ...
Disney releases official statement, rules, and FAQ on new Disability ...
www.insidethemagic.net/.../disney-releases-official-statement-rules-and-f...
Disney Parks' New Pass for the Disabled Is a Dud: A Dad Breaks It ...
www.dailyfinance.com/2013/.../disney-parks-disability-access-service-du...
Is Disney Dissing the Disabled to Solve Its Cheating Problem ...
www.dailyfinance.com/.../disney-dissing-disabled-solve-abuse-problem/
www.mouseplanet.com/.../Autism_and_the_New_Disability_Assistance_...
ktla.com/2013/10/.../disney-changes-rules-on-passes-for-disabled-guests/
- Oct 9, 2013 - Disney begins new policy on passes for guests with disabilities. ... The new program entitled the “Disabled Assistance System,” will reportedly ...
Disney Reportedly Altering Special Needs Access ... - Disability Scoop
www.disabilityscoop.com/2013/09/20/disney-altering-access/18741/
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